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  • Writer's picturelemonadeandthebigc

What's Next?


And now what?


Well, we wait. We wait while the special ops forces, my CAR T cells, are hard at work eradicating and annihilating my cancer.


I am currently staying in the hospital. Not because I feel unwell, but as a precautionary measure. Some of the side effects of the CAR T cell infusions are not pretty, but not everyone experiences them. We will just have to wait and see how my body reacts to them. Over the course of the next 7-10 days I will remain in the hospital where I can be monitored and receive immediate care should it be needed.


Since yesterday, I’ve had a number of medical staff through my room to check how I’m feeling, log my vitals and assess my neurological function. I have every confidence that I am in very capable hands and the hospital staff are doing their best to keep me feeling comfortable and well.


When I had the stem cell transplant, each day for the first few weeks I sent out a little post with one or two sentences about how I’m feeling. I will do that again now. For those of you who aren’t on social media, you can check out the mini posts here. https://www.makinglemonadewiththebigc.com/car-t


Best to buckle up as the ride might get a little bumpy, but rest assured I have a great medical team and they have plenty of anti-nausea medication or anything else I might need. This third time’s a charm.


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